Public Law 92–414

Section 1. short title

This Act may be cited as the “National Cooley’s Anemia Control Act”.

Sec. 2. findings and declaration of purpose

Sec. 3. cooley’s anemia programs

Title XI of the Public Health Service Act is amended by adding after section 1106 the following:

“Part B— Cooley’s Anemia Programs

“Sec. 1111. “cooley’s anemia screening, treatment, and counseling, research, and information and education programs

(a)(a)

(1)(1)

The Secretary may make grants to public and nonprofit private entities, and may enter into contracts with public and private entities, for projects for the establishment and operation, primarily through other existing health programs, of Cooley’s anemia screening, treatment, and counseling programs.

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“(2)“(2)

The Secretary may make grants to public and nonprofit private entities, and may enter into contracts with public and private entities and individuals, for projects for research in the diagnosis, treatment, and prevention of Cooley’s anemia, including projects for the development of effective and inexpensive tests which will identify those who have the disease or carry the trait.

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“(3)“(3)

The Secretary snail carry out a program to develop information and educational materials relating to Cooley’s anemia and to disseminate such information and materials to persons providing health care and to the public generally. The Secretary may carry out such program through grants to public and nonprofit private entities or contracts with public and private entities and individuals.

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“(b)“(b)

(1)(1)

For the purpose of making payments pursuant to grants

Appropriation.

and contracts under subsection (a)(1), there are authorized to be appropriated $1,000,000 for the fiscal year ending June 30, 1973, and for each of the next two fiscal years.

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“(2)“(2)

For the purpose of making payments pursuant to grants and contracts under subsection (a) (2), there are authorized to be appropriated $1,700,000 for the fiscal year ending June 30, 1973, and for each of the next two fiscal years.

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“(3)“(3)

For the purpose of carrying out subsection (a)(3), there are authorized to be appropriated $1,000,000 for the fiscal year ending June 30, 1973, and for each of the next two fiscal years.

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“Sec. 1112. “voluntary participation

The participation by any individual in any program or portion thereof under this part shall be wholly voluntary and shall not be a prerequisite to eligibility for or receipt of any other service or assistance from, or to participation in, any other program. “applications; administration of grant and contract programs

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“Sec. 1113.

(a)(a)

A grant under this part may be made upon application to the Secretary at such time, in such manner, containing and accompanied by such information, as the Secretary deems necessary. Each application shall—

“(1)“(1)

provide that the programs and activities for which assistance under this part is sought will be administered by or under the supervision of the applicant;

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“(2)“(2)

provide for strict confidentiality of all test results, medical records, and other information regarding screening, counseling, or treatment of any person treated, except for (A) such information as the patient (or his guardian) consents to be released, or (B) statistical data compiled without reference to the identity of any such patient;

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“(3)“(3)

provide for appropriate community representation in the development and operation of any program funded by a grant under this part;

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“(4)“(4)

set forth such fiscal control and fund accounting procedures as may be necessary to assure proper disbursement of and accounting for Federal funds paid to the applicant under this part; and

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“(5)“(5)

provide for making such reports in such form and containing such information as the Secretary may reasonably require.

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“(b)“(b)

(1)(1)

In making any grant or contract under this title, the Secretary shall (A) take into account the number of persons to be served by the program supported by such grant or contract and the extent to which rapid and effective use will be, made of funds under the grant or contract; and (B) give priority to programs operating in areas which the Secretary determines have the greatest number of persons in need of the services provided under such programs.

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“(2)“(2)

The Secretary may make a grant under section 1111(a)(1) for a screening, treatment, and counseling program when he determines that the screening provided by such program will be done through an effective and inexpensive Cooley’s anemia screening test.

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“Sec. 1114. “public health service facilities

The Secretary shall establish a program within the Public Health Service to provide for voluntary, Cooley’s anemia screening, counseling, and treatment. Such program shall utilize effective and inexpensive Cooley’s anemia screening tests, shall be made available through facilities of the Public Health Service to any person requesting screening, counseling, or treatment, and shall include appropriate publicity of the availability and voluntary nature of such programs.

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“Sec. 1115. “reports

(a)(a)

The Secretary shall prepare and submit to the President for transmittal to the Congress on or before April 1 of each year a comprehensive report on the administration of this part.

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“(b)“(b)

The report required by this section shall contain such recommendations for additional legislation as the Secretary deems necessary.”

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Sec. 4. conforming amendments t0 title xi of the public health service act

Title XI of the Public Health Service Act is amended—